Links of Interest

These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by Tampa Lung Specialists, P.A. of any of the products, services or opinions of the corporation or organization or individual. Tampa Lung Specialists, P.A. bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.

Patient Instructions:

How to prepare for and what to expect with your Bronchoscopy.

Organizations:

 American College of Chest Physicians

 American Lung Association

 American Thoracic Society

 American Society of Transplantation

 The International Society for Heart and Lung Transplantation

 Scientific Registry of Transplant Recipients
(Designed for Patients and Health-Care Professionals – Provides center-specific volume and outcomes)

 United Network for Organ Sharing

Patient Education:

 “Getting a New Lung” by the American Society of Transplantation

 “A Guide to Lung Transplantation” by the American College of Chest Physicians

Disease Specific Information:

 Alpha 1 Association

 Alpha One Foundation

 Cystic Fibrosis Foundation

 Cystic Fibrosis.com

 EFFORTS (Emphysema Foundation for our Right To Survive)

 Lymphangioleiomyomatosis (LAM) Foundation

 Pulmonary Fibrosis Foundation

 Coalition for Pulmonary Fibrosis

 Hypertension Association

 Hypertension

 Pulmonary Hypertension Central

 PAH

 Sarcoidosis Network Association

 Sarcoidosis Awareness Network

Patient Support:

 One Breath at a Time

 Transplant Recipients International Organization
(Designed for Patients – International organization committed to improving the quality of life for transplant candidates, recipients, their families, and the families of organ and tissue donors.)

 Transplant Living

 Second Wind Lung Transplant Association, Inc.
(Designed for Patients – Patient-run organization that provides information on lung transplantation for patients (and their families) who have had a transplant or who are waiting to have a transplant)

 Transplant Buddies

 Yahoo eGroup on Lung Transplant

 Good Life Resources (Specialty Pharmacy – mail order for Transplant Medications):

 We’ve Been There
(Designed for Patients (under age 35) who are on the waiting list – Interactive Web site dedicated to younger patients on the lung transplant waiting list. Visits by transplant recipients to homes of an individual on the waiting list can be arranged.)

Pre- and Post-Transplant Patient Information:

 American Organ Procurement Organization

 American Society of Transplantation

 Gift of Life Foundation

 Medscape Transplantation Homepage

 National Transplant Assistance Fund

 National Transplant Society

 United Network for Organ Sharing

 TransplantLiving.org

 Breathe Deeply Support Group

 Partnership for Prescription Assistance

 Transplant Living Newsletter

 Drug Assistance Program

 Donated Dental Services

 Florida Coalition on Donation

 United Resource Network

 Pharmacy Assistance

 E-Mail teamflorida@listserv.kidney.org to receive information about Transplant Olympics

Financial and Prescription Drug Assistance:

 Directory of Prescription Drug Assistance Programs
(through the Partnership for Prescription Assistance)

 Manufacturer Financial Assistance

 National Transplant Assistance Fund
(Designed for Patients and Case Managers – Organization whose mission is to help raise funds for transplant and catastrophic injury patients by providing support, education, and expertise)

 NeedMeds.org